11.25.2009

Being Thankful. It's Cool.

I've decided to stop complaining, which is unfortunate, beause it's actually one of my biggest talents.

I've decided that I have no right to say anything but positive things about my life and the direction that it's heading.

I'm blogging from my work, which pays the bills, listening to Borderline by Madonna and devouring a buffalo chicken burger and Diet Mountain Dew. I have fierce hair, an even fiercer husband, and really...I just have no right to not be rainbows and sunshine.

I think I'm finally at a place where I can acklowledge when I am stressed or annoyed, but I'm understanding every day how good I have it and how easy my life is most of the time.

Work or Dylan are the two biggest stresses in my life. Work becuase...it's work and I'm expected to be a rockstar full of sunshine who never messes up and keeps her emotions in check, and Dylan becuase he's my Boo Boo Butt and I want to give him all the help he needs to have a happy life, despite his ASD.

I have found a way to relax at work - we just moved offices, so I am much further away from the hustle and bustle of the office and the constant interuptions, and I can play my music louder than a whisper and not offend anyone with my love of Prince at 7am.

God has really blessed me for no reason, I certianly haven't done anything to have all the wonderful things that I have, and I need to be more deliberately thankful for the one million reasons that I smile.

Thansgiving I will probably be too busy with...well, Thanksgiving, to write a post, so this counts. The older I get, the higher this holiday ranks on the Kelli Top Ten of Good Things. I love a holiday dedicated to reflecting on our blessings and the older the kids get, the more I see how fast life happens.

To my husband who fixes me, has proven himself the most hilarious person alive, and who makes me breakfast every weekend, to my Dylan who makes hope tangible and humor heartfelt, my Lylli for teaching me new tricks, my mom for giving me an example too good to match, my dad for always knowing what to do, (with leftovers or with life,) my youngest brother for making me rethink what's cool, my middle brother for always knowing what to say to make me laugh at innappropriate things, my inlaws for having my children's best intertest in their hearts, and my friends, who truly, truly are the family that I chose - a most sincere thank you.

This lucky lady's out, much love to all you this holiday season!
-Kel

11.03.2009

The Crusades

Dylan - He's lovely and beatiful and talented and charming and clever and sweet and sneaky and trouble and funny.

I want to raise awareness that children who have Autistic Spectrum Disorder can be all of those things.

I see autism being marketed in this package in which my sweet angel does not fit. When I tell strangers that Dylan has austim, they either look at me in pity and wonder how I keep it together raising a special needs child, or wonder if he can solve a rubic's cube in 10 seconds.

I try and make an impact on these people one at a time by sharing what a blessing it is to be this little monster's mommy, in the hope that they will know that autistic children are not monsters with vacant stares and hateful hearts.

My child is a brilliant smile with observant bright eyes and the best hugs kisses you have ever had.

I don't know when it became poplular to make autism the new worst fear for parents, but I'm doing what I can to change minds about this.

Are there those cases? Absolutely. But to have parents hear a diagnosis and think their child will never love them and never enjoy life... that's disgusting.

I want to be that supportive figure for other parents that I didn't have when Dylan's neurologist looked at me and matter of factly told me that he was PDD. I want parents to know that we are lucky to have these differently wired children. Every success with our child means so much more than every success any other parent of a typical child can experience.

Our autistic kids make us better people who are capable of feeling so much more pride, so much more...everything. We have to work so hard for that first word and for that first real connection. It's worth it.

So, I am going to need to become even more informed with all the resources that are available to me to be the beacon of hope that Dylan needs to me to be. Dylan deserves a world that doesn't pity him or fear him, but that respects him and accepts him.

I'm not going to let my Bear down. Every mother out there knows that feeling. You cannot/will not let your baby down.

While I'm crusading, I should probably start a Lylli Tolerance League or something, my mom would sign the petition immediately :) If we're being honest here, I need pity and sympathy for raising THAT kid.

Working on making a difference for my sweet and sour babies,

*Kel